Surprise! We're in Maintenance!!
We thought we had two more appointments of "Interim Maintenance," but found out at clinic today that this was the last and his next appointment (April 23) is the first appointment in the "Maintenance" phase. Woohoo! So, Adam goes in once per month, less intensive, less invasive, hopefully less volatility with his health. Today went extra smoothly, and he hasn't needed much recovery at all. In fact, we were having so much fun wrestling that I accidentally gave him rug burn on the back of his head while dragging him by the feet. Oops.
We are cleared for a lot of things. For example, church (right in time for Easter), school, soccer, swimming, camping, large crowds of people, parks with sand, etc. It will always depend on his counts - the risks when he is exposed to different bugs and illness are still a concern, but since his immune system will have time to recover between treatments, there is less caution. I didn't realize, but it was a huge weight trying to maintain isolation with some degree of normalcy and without Adam feeling like he was being isolated. We feel liberated, a sense of accomplishment, and EXTREMELY blessed! We were only admitted (unexpectedly) once in the whole 7 and a half months of these treatments. We had (only recently) nausea and headaches as a side effect. We have remained in remission since the 3rd week after diagnosis. Praise God we can be celebrating these things today!
I am looking forward to 10 days of Easter Break to spend with my kids! Not sure what fun things we will do, but the options are pretty open right now :)
No comments:
Post a Comment